When Our Agenda Becomes Louder Than Theirs

Shelley: When Our Agenda Becomes Louder Than Theirs

There is a simple truth we don’t say often enough in dementia care. Dementia behaviors are communication, not defiance. We, the sapphire brains, can choose.Amber and ruby brains cannot. And yet, far too often, we expect them to. A Story We Need to Pay Attention To I’ve been working closely with a family whose mother … Read more

The Real Reason Care Partnering Falls Apart Has Nothing to Do With Emergencies

(The small moments most families ignore—and why preparation matters long before panic sets in) Mom was being stubborn again. At least, that’s what I call it when she absolutely will not see the big picture and cannot understand why she can’t drive anymore. One day she’s perfectly logical about it and hands me the keys. … Read more

Why More OT Students Should Experience Fieldwork Outside the Clinic

Before we get into this story, here’s something I didn’t fully appreciate until recently. Some of the most valuable occupational therapy learning doesn’t happen inside a clinic at all. It happens in the messy, unpredictable, beautifully human environments where people actually live their lives. How This Opportunity Came About For the first time in my … Read more

There’s No Place Like Home…

(Until Home Becomes a Cage) If you’re caring for an aging parent, you’ve probably heard this phrase more times than you can count: “There’s just no place like home.” Sometimes it’s said warmly.Sometimes defensively.And sometimes with a kind of quiet fear underneath it. And yes, home can absolutely be comforting. Familiar.Predictable.Wrapped in memories like a … Read more

The Irony That Hit Me Like a Brick

(While Building Something to Prevent Bricks) There I was… Preparing to stand in front of a room full of people and talk about how to avoid crisis when it comes to aging parents. You know…the whole “don’t wait until everything is on fire” conversation. The program.A system I built.And a platform designed to guide families … Read more

When Your Loved One Says ‘Someone Stole My Things,’ Don’t Do This

How to Respond to Accusations Without Damaging Trust When Accusations Start One of the hardest moments for families is when a loved one with dementia says someone has stolen their belongings. Joanna struggled with this often. She would accuse other residents or staff of taking her things. One day, it was her undergarments. We searched … Read more